Canadian Web Sites
Cystic Fibrosis Canada / Fibrose kystique Canada
Cystic Fibrosis Canada (formerly known as the Canadian Cystic Fibrosis Foundation) is a national health charity established in 1960, with volunteers in more than 50 chapters across Canada.
Cystic Fibrosis Canada’s mission is to help people with cystic fibrosis by:
- funding research towards the goal of a cure or control for cystic fibrosis;
- supporting high quality CF care;
- promoting public awareness of cystic fibrosis; and
- raising and allocating funds for these purposes.
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Cystic Fibrosis Canada Chapters and AssociationsAssociations
Comité provincial des adultes fibro-kystiques/Adult CF Committee of Quebec (English/French)
Fibrose kystique Québec/Cystic Fibrosis Quebec (English/French)
USA Web Sites
Cystic Fibrosis Foundation (USA)
The mission of the Cystic Fibrosis Foundation is to assure the development of the means to cure and control cystic fibrosis and to improve the quality of life for those with the disease. The Cystic Fibrosis Foundation is a resource of information about cystic fibrosis.
National Jewish Health
Since 1899, National Jewish Health has been at the forefront of research and medicine. National Jewish Health integrates the latest scientific discoveries with coordinated care for lung, heart and immune diseases.
The University of Colorado Adult Cystic Fibrosis Center at National Jewish is dedicated to providing specialized care and preventive services for individuals (adults and adolescents) with Cystic Fibrosis.
Cystic Fibrosis Research, Inc.
Cystic Fibrosis Research, Inc. exists to fund research, to provide educational and personal support, and to spread awareness of cystic fibrosis, a life-threatening genetic disease.
American Lung Association
The American Lung Association® is the oldest voluntary health organization in the United States, with a National Office and constituent and affiliate associations around the country. Founded in 1904 to fight tuberculosis, the American Lung Association® today fights lung disease in all its forms, with special emphasis on asthma, tobacco control and environmental health.
Cystic-L
CYSTIC-L is a free email service dedicated to the exchange of information and support specific to cystic fibrosis.
National Library of Medicine and National Institutes of Health
MedlinePlus is a goldmine of good health information from the world's largest medical library, the National Library of Medicine. Health professionals and consumers alike can depend on it for information that is authoritative and up to date. MedlinePlus has extensive information from the National Institutes of Health and other trusted sources on over 650 diseases and conditions. There are also lists of hospitals and physicians, a medical encyclopedia and a medical dictionary, health information in Spanish, extensive information on prescription and nonprescription drugs, health information from the media, and links to thousands of clinical trials.
National Heart, Lung and Blood Institute
The National Heart, Lung, and Blood Institute (NHLBI) provides leadership for a national program in diseases of the heart, blood vessels, lung, and blood; blood resources; and sleep disorders. Since October 1997, the NHLBI has also had administrative responsibility for the NIH Woman's Health Initiative.
Stanford Hospital Cystic Fibrosis Center
Stanford's site contains information about the center, including contact information, as well as new community projects going on (like books and outreach programs) and current and future clinical trials related to Cystic Fibrosis. The site is maintained one of the Stanford CF clinic nurses and web content is submitted by the staff. This is a well-rounded site with all sorts of interesting information.
New York Online Access to Health
NOAH provides access to high quality full-text consumer health information in English and Spanish that is accurate, timely, relevant and unbiased.
The Breathing Room: The Art of Living With Cystic Fibrosis
The Breathing Room was developed to serve the Cystic Fibrosis community. They believe that organ transplant, palliative care and hospice care are issues that all people with CF will face, in one form or another, at some time or another. It is the goal of The Breathing Room to address these profound emotional issues, not to offer advice or medical consultation, but to present personal experiences and resources for community members to utilize when face to face with such important issues.
International Web Sites
Cystic Fibrosis Worldwide
Cystic Fibrosis Worldwide works to promote access to appropriate care and education to those people living with the disease in developing countries and to improve the knowledge of CF among medical professionals and governments worldwide.
Cystic Fibrosis Trust (UK)
The Cystic Fibrosis Trust funds medical and scientific research aimed towards understanding, treating and curing Cystic Fibrosis. It also aims to ensure that people with CF receive the best possible care and support in all aspects of their lives.
Cochrane Cystic Fibrosis & Genetic Disorders Review Group
The Cochrane Cystic Fibrosis & Genetic Disorders Review Group comprises an international network of health care professionals, researchers and consumers preparing, maintaining, and disseminating systematic reviews of randomised control trials in the treatment of cystic fibrosis and other genetic disorders.
Cystic Fibrosis Association of New Zealand
The Cystic Fibrosis Association of New Zealand helps to increase the quality of life for people with Cystic Fibrosis by encouraging people with Cystic Fibrosis to participate in physical activity. They also educate the public about Cystic Fibrosis and its impact on those affected and their families.
